The following UK organisations offer information and support for lung cancer patients:
Roy Castle Lung Cancer Foundation
www.roycastle.org
Ruth Strauss Foundation - Supporting families facing the death of a parent
https://ruthstraussfoundation.com/
Macmillian Cancer Support
www.macmillan.org.uk
Maggie’s Centres
www.maggiescentre.org
Hope Support Services – a UK charity supporting young people when a loved one is seriously ill
www.hopesupport.org.uk
National Institute for Healthcare and Excellence (NICE)
www.nice.org.uk
Lung Cancer Europe
www.lungcancereurope.eu
Cancer Research UK
www.cancerresearchUK.org
Asthma + Lung UK
www.asthmaandlung.org.uk
Marie Curie
www.mariecurie.org.uk
There are also several US organisations for lung cancer patients and EGFR positive patients specifically which are very helpful.
EGFR Resisters – founded in the US, this is a large international community of EGFR+ lung cancer patients with an active and knowledgeable Facebook group as well as an informative website
www.egfrcancer.org
Lungevity Foundation
www.lungevity.org
Bonnie Adario Lung Cancer Foundation
www.lungcancerfoundation.org